Tag Archives: spring break

Looking Up and Ahead


Roanoke Girls, Jes in the middle

Roanoke Girls, Jes in the middle

The week ended on a good note.  Jes went to school yesterday for two classes and felt good afterward.  She says that she can tell that her body is pulling out of this relapse because when she gets tired, it’s more of a normal tired and she feels better after resting up a bit.  I sure hope that she’s right.  It sure was a long seven month relapse.

We’re heading into spring break now.  I’m not sure what next week will hold for us.  Jeff has to travel back to our “hometown” of Roanoke, Virginia for a few days and Jessie has been hitting us with a raging campaign to go along to see her friends.  We said earlier (in December) that she wouldn’t get another trip until summer because she went during Christmas break and felt horrible after using little common sense and throwing all caution to the wind.  Honestly, she’s 16.  How much common sense is she supposed to have when she gets to see her peeps for the first time in four months?  Obviously, I’m sitting on the fence with this one.  I’m the weak one who hates saying no.  Jeff on the other hand is the tower of strength with this one and is staying firm in his decision.  The next several days will be interesting as Jessie continues to run a pretty strong campaign!  So far she’s written two full page letters to her dad making every conceivable promise under the sun.  I just sit back with this one out of my hands and watch to see if he caves.

I understand his point fully and will support his decision.  As for Jessie, I sympathize with her.  She’s been miserable sick for all these months and wants to go back “home”.  She’s on spring break, they will be in school during the day and she can sleep in and rest.  See, I am truly the weak one in the family.  There’s always one.  The kids know who to appeal to.

Oh well, we’ll see how it progresses.

Sophie at the Studio

Sophie at the Studio

I’ve put a picture of our dog, Sophie, standing outside of my studio at our home in Virginia.  The studio was in the top part of a detached garage on the side of a hill. Our house was like a cabin in the mountains.  Actually, it WAS a cabin in the mountains.  I loved it dearly.  Not fancy, but unique.

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Monday Morning

Monday, the start of a new week.  This week our part of Georgia is celebrating spring break.  Jessie isn’t going to school right now anyway, but I’m thinking that the tutor is on vacation and therefore, so are we!  

Jessie’s headaches were pretty relentless last week and, as always, I’m hopeful that today will find some relief.  We shall see.  Everyone sleeps in except mom and dad this week.  So this is my quiet time.  

Last week we were told to add TONS of supplements to the daily medicine intake, so Jes is now taking, twice a day, Lyrica, Pamelor, multivitamin, coQ10, fish oil, calcium, magnesium, b12, and b2 (which I haven’t found yet).  She adds in Fioricet as needed for headaches.  Jessie actually took a picture of her pile of medicine for Facebook, I think.  

She was also given orders to consume more salt and water and to lie down for 10 minutes every hour.  This is a result of the orthostatic intolerance.  Now as an aside, tell me if you disagree, please.  Okay, first here’s the list of suggested higher sodium foods:  noodles, potatoes, parmesan cheese, dill pickles, tv dinners, sweet & sour pork, lasagna, soup, fish & chips, hamburger, hot dog, fried chicken, pizza, pretzels, soy sauce, olives, and salted nuts.  Gimme a break.  I told Jessie that if a doctor told me to eat more foods like that and lie down for at least 10 minutes every hour, I’d say, “sign me up!”  Realistically, we know that if she ate that way every day (in a gluten-free way) she would gain 50 pounds quickly – not wise.  So we will continue our search today for salt tablets.  Whole foods and Walmart, here we come.  One more thing.  When my husband and son learned that she needed salt, they volunteered to head out to the nearest farm store and pick up a salt block so that Jessie could go out in the back yard and lick it from time to time.

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