Tag Archives: school

New Celiac & CFIDS/CFS/ME Posts

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ME/CFS: What It Feels Like

The One Thing About CFS

Life Changes and Adjustments

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Playing Chronic Illness Roulette (OR) Welcome Back to School…

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I’m going to begin with, “Isn’t summer delicious?”  No stress, no alarms, no bed times, no parents standing over you screaming at the top of their lungs telling you to get ready for school.  The deliciousness of summer ended for us two weeks ago.  Yes, I’ll admit that, as a parent, I was ready to get the monsters kids out of the house.  However, as the end approached I felt an even stronger, familiar ache in the old tummy.

I knew immediately that this deep ache was my all-time, “A” number one enemy, inspiration of all things therapeutic, of all things yoga, and quite frankly, the evening glass(es) of wine.  Yes, it was (pause for effect) parent of a chronically ill child anxiety.

Now if you’re out there, currently perusing this post, you know who you are.  No need to fool yourself.  In fact, sometimes it’s better to go ahead and lay it all out in front of God and anybody else who cares to listen rather than bottling those feelings up deep inside.

Having said that, consider yourself forewarned that the summer has indeed ended and, while I may appear incredibly elated calm on the outside, inside I am a quivering ball of nervous mush.

The anti-christ Jessie has been in school for two weeks now and until today has done splendidly.  She has been very tired in the evenings, but has been great about resting.  This weekend, her boyfriend, Satan himself Nathan, came for a visit.  I have to say that it was an enormously stressful terrific weekend.  Jes, Nathan, Wes and friends did lots of fun things, interspersed with tons of rest.  I think she’s had a bit of a flare (CFS term meaning tiny relapse) but it’s probably minor and short-lived.  I confess that the timing probably wasn’t the best for a visit and the blame falls entirely on the stupid kids for planning this me.

Oh well.

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She’s a Celiac!


Official town crier, "I don't heart gluten!  But I LOVE tuna!"

Official town crier, "I don't heart gluten! But I LOVE tuna!"

Where do I begin?

Well, you know (and if you don’t, read up) that the gastroenterologist advised Jessie to try out the whole gluten thing a couple of months ago.  The girl has seriously had a party for herself for the past eight weeks or so, consuming every gluten-laden food in sight, with absolutely no side effects.  As directed by Mr. Doctor, we went to have the labs done earlier this week to see what’s going on.

My opinion?  I told  Jes that it was a formality.  She clearly doesn’t have celiac.  She said she has no side effects but had a nagging feeling.  (Okay at this point you know the ending, but I’ll go on)  Doctor’s office called us this morning to say that her levels were up and it clearly indicated that she does have celiac.  I nearly fell over.

I marched upstairs to deliver the good and bad news to Jessie.  Good news?  Starbucks now has gluten-free cake proudly displayed for all celiacs to enjoy.  Bad news?  She’ll be eating it.

The nurse also said that, while Jessie’s levels were clearly indicative of celiac disease, she wasn’t the worst case scenario. The T3 test showed that her level was 9 while normal is 0-3.  Nurse advised that she had someone in the office yesterday whose level was 175. So, that helped to put things into perspective.  Apparently there are LEVELS to this disease.

We’ll be going in to see the doctor on July 1st and will discuss whether it’s safe to cheat from time to time when you have no symptoms or if she has to refrain from the gluten 100% from here on out.

So there you have it.  I’ve all but abandoned my “Gluten-Free Foods That Don’t Suck” section.  Guess I’ll be chugging along again!

I hope you are all having a wonderful summer.  We certainly are!  The school pressures are gone, THANK GOD!  I’m going to brag a bit, but hey, I am a mother.  Jessie pulled straight A’s.  It’s a good thing.  Now I have to deal with the school this summer and beg for the right classes next year.  In the words of Ms. O’Hara, “I’ll think about that tomorrow.”

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One More Day!

Just one more day, one more exam and summer vacation will officially begin at 12:15 tomorrow.  WooHoo!  Even more good news, Jes was able to finish everything – thanks to a few sleepless nights – and is doing fine. 

We ARE heading out for Virginia and West Virginia tomorrow.  Jeff and I will get to enjoy the Greenbrier Resort this weekend while Wes will visit friends in North Carolina and Jes will be in her beloved Virginia with friends.  Because of a Friday exam, Jes and I will be driving separately which means we get to hang around our old “hometown” until Tuesday instead of rushing back with Jeff on Sunday.  

After our weekend, we’ll head back home to tackle all of the doctors appointments that I rescheduled for the week after school. We go to the neurologist on Wednesday, then the cardiologist and finally the gastroenterologist.  Jessie will be getting the blood tests testing for celiac next week so we’ll get the results from that when we go to the GI doctor.  Jessie still thinks that he will say she has celiac disease even though she hasn’t had any reaction at all.  I think she’s just bracing for bad news, but I honestly don’t see how that can happen.  We’ll see.

Hope everyone’s “end-of-school” weeks are over and you’re enjoying your summer vacation.

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Lenox, Here We Come

It’s been a good weekend.  Between studying and preparing for the upcoming week, Jessie actually got a few breaks.  We went to Lenox Square in Atlanta Sunday afternoon to go to Jessie’s favorite stores, Anthropologie and Urban Outfitters.  We both picked up a few new things for summer.  It’s difficult to keep Jes focused on what she actually NEEDS, but we succeeded rather well AND had a great time.  I think we stopped just before she was totally wiped out, so that’s a good thing.  Thank goodness for little packets of peanuts and Powerade! 

After watching movies this weekend, catching up on “Glee” and “The Fashion Show” and eating more bad things than I can (or will ever) possibly own up to, I’m ready to get back to somewhat of a normal state.  

The boys will be back a little early today because Wes is having trouble with some dental work that was done a couple of weeks ago.  I’m thinking that he has an abscess because Advil is not taking care of it, so they’re on their way home.  Poor thing.  I think they did have fun while it lasted though. 

Have a relaxing Memorial Day.

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We Made It – Almost

It’s FRIDAY!  TGIF  The fellas are happily biking in West Virginia.  Jessie and I are ready for a relaxing girl’s night in.  We’re having take-out yummy food and watching a movie called Bride Wars.  At least I think that’s the name.  Last but certainly not least, we have brownies, vanilla ice cream and chocolate sauce, oh yeah.

Jessie finished everything in Spanish except for the final exam which she’ll take on Tuesday.  She’s finished with Algebra 2. Believe it or not, the breathing is a little easier now.  In addition to the Spanish exam, here’s the “to do” list for next week (Tuesday to Thursday):

10th Lit

  • The Kite Quiz
  • The Kite Runner Test
  • Voc 5 Sentences & Quiz
  • Final exam

 Drama

  • Final Exam

 US History

  • Cold War Unit Test
  • Final Exam

Biology

  • Project (due Tuesday)
  • Final exam

All that and we’re trying to leave early Thursday morning for a family/business trip.  Sheesh. Jes is worn out from this past week and desparately needs to catch up on some sleep.  We will enjoy this evening, then the studying begins anew tomorrow.

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Six Days And Counting!

We’re down to six days!  Whoohoo!  I say “we” loosely, of course as I am only the first-hand witness to the madness. 

If all goes REALLY well, Jes will be finished with Algebra 2 and Spanish 2 by this Friday.  Then I think she just has a final exam in Biology and a project.  Maybe some other stuff for next week, but I try not to stick my head within two feet of the general work area or ask too many questions.  Otherwise, danger will immediately ensue.  

Jessie’s actually doing pretty well, not too scary and continues to be confident.  She is sleeping okay, but waking up tired.  I honestly don’t see how someone can do this for too long on lousy sleep.  I think the only thing that’s getting to her is that she has been too busy to walk, do pilates, or go anywhere but school and home.  Yeah, that would get to me too.  Perfect definition of “stir crazy.”  Oh, she DID get to watch American Idol last night.

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