I have been a slacker now for almost a month! Posts have been few and far between, which is a no-no in blogland. This is the busy season for any chronically ill teenager trying to play catch-up and finish the school year. For the parent of a chronically ill child, the road is hot between the school and doctor’s appointments. Jessie is plugging away with Hamlet, Algebra 2, Biology, Drama, Spanish 2 and US History with her usual insistence that everything will be fine. (Shouldn’t this scenario be the other way around?)
We had an appointment yesterday for results from the sleep study. Jessie had an end-of-grade test, so I went alone. Long story short, she woke up 18 times during the night of her study and never was able to fall into a deep sleep (REM). We needed a doctor to tell us this? Jessie is also a mild snorer. (Good thing she doesn’t bother reading this blog. She’d kill me for writing that.) She didn’t have any other issues like restless legs or apnea. The doctor wrote her a prescription for Flonase to clear her up a bit at night to see if that helps. If not, we will try a little higher dose of Melatonin. If THAT doesn’t help, they will just have to give her something else to help with the sleep. I don’t know why, that all of a sudden in October, the Pamelor just quit doing it’s job.
Other than that, things are quiet around here. No more doctor’s appointments for the week. I have cleared the schedule through the end of the month allowing for “the crunch.” We were supposed to get the labs done for gluten testing, but we’re holding that off as well. Jes is still happily consuming all things gluten without any stomach problems.
Yesterday was not that great. Jessie ended up working with the tutor at home in the afternoon taking only one test instead of the two that were planned. Afterwards we walked to the tennis courts for about 15 minutes. In the end, I went back to the house and got the car to come pick up Jessie. She started feeling weak and had the flashy lights feel.
This morning she reported that she slept terribly. She said that it felt like she slept on a board all night. Jessie is achy and tired today. However, she needs to try to make it into school today for at least one class.
Seems to me that she’s beginning to see what happens if she goes off of the original medication. I don’t think either of us regret this action at all. It will be good to see where she stands and what needs to be done.
We’ll see how it goes.
We’re about to begin our third day of taking only Florinef. I’m sure that any regrets we may have for ditching the old meds will hit us sometime this weekend. Hopefully there will be no regrets, only happiness. Remember, we doubled the Florinef on Wednesday and did away with her other medication.
Jessie was lying on her bed reading for hours yesterday trying to finish a book for her english class. She got dizzy twice when she got up (dizzy meaning dizzy with black and light flashes). She said it passed and surmised that it was because she’d been lying down for so long in one spot. Considering that she had one of those “study all day” days and got through it without a killer headache, I take it as a good sign. It will be interesting to see how she slept last night. I’ll be holding my breath throughout the upcoming week, waiting for the ball to drop – and I thought I was a “glass is half-full” kind of person. (Truly I am; this is just a fluke)
Wes is going up to North Carolina this weekend to deliver Jeff’s old dirt bike to the guy who bought it. He will be staying with friends. Another sign that she’s feeling a bit better is that Jessie literally pitched a fit last night because she wanted to go so badly. Normally she would not be up for a road trip. Of course, we had to say no because she’s been sick and we just changed her medication drastically. I hate pulling the “mean parent” routine. It’s gotta be done from time to time, but it really sucks. First of all nothing would make me happier than to make my kids happy. Second, nothing would please me more than to send both of my kids AWAY for a weekend. “Mean parent” surfaced, so I’m sure to be given the “treatment” all weekend long. Fun Fun
Jeff had to fly to Chicago for what will probably be a one-hour meeting today. He’ll be back tonight. Usually a conference call is all it takes, but every once in awhile he has to make a ridiculous trek for a one-hour meeting. I sent him with a book I’d just started, “Three Cups of Tea”. I think he’ll like it.
Okay let the day begin. Here’s wishing you a wonderful, peaceful Friday.