Tag Archives: headaches

I’m So Ashamed

WooHoo for warmer weather!
WooHoo for warmer weather!
And picnics with friends...
And picnics with friends…

And roasted marshmallows!

And roasted marshmallows!

Before talking about the wonderful springtime weather, allow me to confess.  I glutened my daughter.  No, I didn’t do it on purpose and it doesn’t make much sense, but the fact remains that Jessie was glutened by her own mother.  

One night this past week we had pork chops and rice for dinner.  The next day Jessie told me that she had cramped really badly that night.  No other symptoms, but she knew that it was the same cramping she’d experienced before.  We mentally went through the entire recipe and there was nothing.  The only difference was that I’d just purchased Kroger brand basmati rice which was different that the brand I had been using.  Sue me.  I tried to save a few bucks.  

Fast forward to last night.  We had chinese.  (This is no joke.  I am a fabulous cook of chinese cuisine.  Jeff is beginning to call me Lori-son while doing his best oriental imitation.)  I said that we were going to have the rice, so if Jessie had cramps again, we’d know that it was the rice.  Sure enough, it was worse for her last night (sparing gory details here), but thank goodness by morning it had passed and she felt better.  The only thing I can figure is that the rice is processed in a plant that also processes wheat products and it was cross contaminated.  Golly, I’m sticking with the expensive rice from here on out.  Even when you think you’re safe, you just never know about those sneaky gluten attacks.  

It’s Sunday now and Jessie told me that, overall, the headaches have been pretty bad this week.  This morning she is feeling better with no tiredness, achy muscles or joints OR headaches.  It’s been five days now since she stopped taking the other two prescription medicines that she’s taken for over three years.  Every morning I wake up wondering if she will have a major crash.  Well duh, that was a stupid remark.  It’s really no different from any other morning in the past three years.

Now for the cheerful springtime talk.  It’s been beautiful here this weekend with temperatures in the mid 70s.  Jeff and I stopped off after church at Wally-World to pick up tennis balls (one canister for us and another for our dog, Sophie) and he’s taking Jessie down to the tennis court this afternoon to send a few of those new tennis balls over the fence.  My irritatingly worrisome self needs to remember to tell Jeff not to let Jessie overdo it. 

Have a good week!

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Catching Up

 

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I haven’t written much on Jessie’s condition since Monday morning because there’s really not much to write.  She hasn’t done as well for the past couple of days as she did over the weekend.  Yesterday she was extremely pale again with a few of the spotty stabbing headaches.  

The headache could be from lying in her bed reading, get this, “The Professor and the Madman: A Tale of Murder, Insanity, and the Making of the Oxford English Dictionary”.  Sounds like a page-turner, doesn’t it?  Some of the things that they make you read in high school really could cause excruciating stabbing migraines.  Don’t you think?

I’ve said this a thousand times already, but we head back to the cardiologist today.  I don’t know why I get so excited when we go to the doctor.  I guess that, as a mother, I continue to believe that each visit will bring SOMETHING that will bring us a cure.  Not a very realistic thing to hold on to.  But, alas, I am a mother.  That is what we do best, realistic or not.

As an aside, I just received my morning text message.  It’s from a 15 year old girl (friend of Jessie’s) in Virginia who has developed quite the following.  She sends a bible verse every day and has done it faithfully for about two years.  Anyway, as I write this post, I receive mine.  Here it is:

“Faith is being sure of what we hope for and certain of what we do not see.”  Hebrews 11:1

Timely, don’t you think?

Have a wonderful day.

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March Already?

I cannot believe that today is March 2!  Time is flying and I am really getting old!  March did not usher in the warmth of spring.  It came in roaring like a lion with icy rain, snow and wind.  

Having said that, it was not a bad weekend!  Wes’ friend, Hunter, was in and the boys had a blast together.

We’ve begun to call Jessie “Cheeky” because of her rosy cheeks.  Last night we discussed this at the dinner table and she said that she does feel a little better.  My husband noted that we haven’t seen the herbal headache pack pulled out of the freezer, she isn’t walking around holding her head, and she is more pleasant to be around in general!  This is a good thing and we hope it continues.  

I got a call from the doctor in Charlotte on Friday afternoon advising that the Florinef should help with her headaches as well as other symptoms if it does it’s job properly.  We will go to the cardiologist on Wednesday for a followup.  I’m hoping he sees progress and increases it a bit.  One more increase could get her where she needs to be.

Have a great day.

**Nice quote to ponder:  “We cannot all do great things, but we CAN do small things with great love.” – Mother Teresa

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Happy Friday Pictures

TGIF and TGIF!
Brief update:  Jessie woke up feeling better than she has for the past couple of days.  That’s good.  
I haven’t resolved the school issue yet.  Hopefully around the first of next week.  

I’m adding in a couple of completely unrelated photos that just make me laugh.  I hope they make you laugh too.

Sophie, aka Useless Dog of Endless Naps

Sophie, aka Useless Dog of Endless Naps

 

Oreo, aka Cat Of 1000 Evil Faces

Oreo, aka Cat Of 1000 Evil Faces

 

Jessie, aka Girl of 1000 Sarcastic Comments

Jessie, aka Girl of 1000 Sarcastic Comments

 

Wes, aka Boy of 1000 Bicycle Mishap Scars

Wes, aka Boy of 1000 Bicycle Mishap Scars

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Waiting

Yesterday began on a good note.  Jessie did get her braces off and her little (expensive) teeth are just beautiful.  Then, I hate to say it, but the day kind of went south from there.  

First of all, on the way back from the dermatologist, Jessie said her head was getting worse.  

Without going into too much detail, upon returning home, I had to get on the phone with Fed Ex over a delivery “mishap” on their part that is completely unbelieveable.  Let’s just say that there is an expensive bike part which has now made it across the country five, yes five, times – completely due to errors on their part.  They apologize profusely, then say there’s nothing that they can do but try to grab the box off the truck at the next stop which is in 5 business days.  This, I can assure you from past experience, will NOT happen.  Sheesh.

Next, I hear from the school that they have not received the form from Jessie’s doctor here in Georgia concerning her homebound status.  I call the doctors office, actually speak to the nurse and she reports that the doctor (note: this is a new doctor as we just moved to Georgia) received the letter from the other doctor in North Carolina stating that Jessie has been diagnosed with Neurally Mediated Hypotension as the result of a positive tilt table test and Clinical Chronic Fatigue Syndrome.  Our Georgia doctor told us that from that letter, she has insufficient proof of the diagnosis.  What led the NC doctor to diagnosis her with CFS?  I responded that Jessica was diagnosed over three years ago in Virginia and that she has the record in her file of a positive diagnosis from her Virginia doctor as well as a second confirmation from a rheumatologist at Duke University.  Nope, sorry, not good enough.  

So, I call the doctor in North Carolina.  Proceed to fax a release for Jessie’s blood tests, etc.  Then I cross my fingers, pray, and throw salt over my shoulders that the proof which will be sent to our fabulous Georgia doctor will be sufficient so that the homebound form will be signed and faxed to the school.

If she doesn’t approve the status we have two choices.  Jessie would have to return to school, which we know really isn’t possible at the present moment.  Or her dad and I will have to pull her out, which isn’t that big of a deal except for the fact that I will have to figure out a way for her to get the other semester’s credit through a correspondence school. 

In Virginia we had a fabulous doctor and a terrible school.  In Georgia we have a fabulous school and a terrible doctor.  Does God just want to keep things interesting or what?

NOW I can have lunch.

*On a happy note, I was able to hide away in my studio later and finish a necklace that I was working on. Meditation in any form; it’s a good thing.

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A Very Important Day

Why is it an important day?  I’ll tell you.  Jessie gets her braces off today, YEAH!  Now I may be entirely wrong, but even with the possibility of a headache, muscle-aches, etc., a girl’s gotta feel good about getting the “bane of her existence for the past 2+ years” removed from her mouth!  Our appointment is at 10:20. I shall take pictures to commemorate the event.  

For an update: 

We didn’t see the tutor yesterday because Jes never felt any better.  It was a crappy day in general.  The frustrating thing right now is that nothing is really being done to alleviate the headaches.  I guess hypotension takes precedence?  

I hate all of this WAITING.  We have to wait to see the doctor in North Carolina; then wait to see the cardiologist.  Then we wait to hear results of tests.  We wait to see what happens when they start her out on the lowest dose of a medicine that may not even work once we’ve waited to see if the higher dose works.  We wait to see if the next new medication works.  Then, this is a biggee, we call the doctor and have to WAIT all day by the phone to get a reply so that they can tell us to WAIT.  Why can’t it be like strep or some simple infection?  Why can’t they just figure out what’s going on and give her something to make her feel normal again so that she can get on with her life?  Oh yeah, they’re not God.  Okay, breathe.  I’ve had my rant for this morning.  Three steps forward, two steps back, but we are moving forward, right? 

I’m also still in the midst of getting doctor’s letters coordinated and to the school so that Jessie’s status can be changed to full-time homebound.  Why can’t doctors just drop everything when you call and write the freaking letter and fax it to the freaking school already?  Oh yeah, right,  they’re not God. 

Today is going to be a good day.  I can feel it.

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It’s a bad day today

Jessie reported that she slept badly last night and woke up with a terrible headache.  She has that look that leaves no question in my mind.  The tough part is that she’s scheduled to take a biology test with the tutor this afternoon.  Right now, I don’t see it happening unless the headache lets up a bit.  

I added something new to the slowly growing recipe list this morning.  It’s called Bucatini All’Amatriciana with Spicy Mozzarella and Meatballs.  Translation = Spaghetti and Meatballs.  Once again, I got it from Giada on Food Network.com and adapted it as a gluten-free menu.  It was very good and not at all difficult.  At first I though I couldn’t make it because the meatballs called for breadcrumbs, but I got some gluten-free bread, toasted it up and next thing I new, I had GF breadcrumbs.  Try it if you’re in the mood for some good authentic Italian food.  

*NOTE: The link here provides you with the regular recipe on Food Network.  If you want my gluten-free version, click on my recipe tab.

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