That’s what we like to say around the house. My husband gets excited about Blue Jean Friday. Although, if I look a little deeper it’s probably excitement about the impending weekend rather than the fact that he gets to wear his jeans. In addition, the sun is supposed to show up for Blue Jean Friday. YEAH!
Yesterday was a good day. Jessie went to school around mid-day, then stayed afterward to play catch-up. In all, she was there from about 1:30 until 4:45 – a good day indeed. The best thing is that she didn’t feel the exhaustion afterward. In fact, she was in her room doing pilates when I went to bed last night.
We’ll see how she fares upon waking, but the plan is to head back into school this morning for a few hours. Next week is spring break and I’m thinking that, if we’re lucky, the following week will get us back to semi-normal/normal. Maybe the medicine is completely into her system and working properly. Whew. It’s been a LONG seven months. Gosh, I didn’t realize that this bout has actually lasted SEVEN months. I’m talking seven months for just this phase. She’s actually been sick since 2005.
This whole sickness continues to boggle the mind. What have we learned from this experience? Does she have a myriad of illnesses including CFIDS, Celiac, and Orthostatic Intolerance? Is she pulling out of CFIDS and moving into something else? Did she ever really have CFIDS? My answer is, of course she did. The onset was too textbook. Even the specialist, who sticks to the diagnosis of clinical CFIDS wonders if the majority of her problems are from Celiac. The symptoms are extremely similar. The new pediatrician questions whether or NOT she has Celiac. We will go to an gastroenterologist this month and finally put that question to rest. The cardiologist believes that CFIDS is an overall name for an underlying illness. I tend to side a little with him. I think it’s something that will one day be figured out by a researcher and make complete sense. While I’m fantasizing, I’ll add that it will have a cure. Hey it’s my brain and my thought process, I can add anything I want to.
Once again, my constant questions rear their ugly head. But isn’t it the questioning that moves us forward? I like to think so.
We went to see the new PCP today and really liked her, thank goodness! She said the magical words Jessie’s been hoping for all year; she’s hoped for these words even more than the possibility of hearing, “I don’t think you have Chronic Fatigue.” The new doctor said, “I’m going to send you to the gastroenterologist to do a recheck on this Celiac thing. It may be a good idea to have another endoscopy.” Yep, the girl is holding out hope that she can eat wheat. Of course, I quickly added that she needs to be prepared to hear that she does indeed have this disease.
In all honesty, we are a little confused as to what, exactly, she’s having trouble with. Jessie ate Chick-fil-A chicken nuggets last year and didn’t have a reaction. She continues to eat the prized nuggets regularly without side effects. In every other aspect of her life, she is gluten-free. Yet she has a reaction when she eats cross-contaminated rice. I guess a second check would be interesting.
The doctors are certainly making their money off of us this week. We go back to the cardiologist tomorrow for a recheck. He’ll have to get the sad news that his experiment failed and Jessie is back on all of the medication.
I know I’ve said this before, but wouldn’t it be nice if you could just kidnap all of your doctors and put them in a room together? Then they would discuss their various “theories” and ultimately reach the perfect solution or cure. That’s just not real life, is it? I guess I’m dreaming again. Shame on me.
A sad photo...but SOOO good!
No, Jessie isn’t magically better. She’s still plugging along. I guess the first night was a fluke and it’s taking a bit to get the medicine back into her system. I think she’s improving at a snail’s pace. Still no school, but I’m hopeful that today she’ll wake up a bit more refreshed and can go in for a couple of classes.
Last night my husband got some really good news with his job and I’m not allowed to give specifics. But suffice it to say that we made Jessie go out for a celebratory dinner last night. We went to Outback and at the end of the meal, Jessie begged me to share a Chocolate Thunder From Down Under. I was so full from my dinner that I couldn’t. We let her order it anyway because it’s one of the only places we know of that offers a gluten-free dessert. Even if you can gobble gluten happily, you haven’t lived until you’ve tried this dessert. It’s to die for.
In the end, keeping the tradition and philosophy for all women around the world, I ate chocolate, and ate, and ate. Jessie and I attacked that dessert like nothing I’ve ever seen. The guys were talking and a few minutes after we’d received the dessert, they happened to glance in our direction. Their mouths fell open and they died laughing. The plate was completed clean and we looked like two fat cats who’d just eaten the prized canary!
After dinner, we came straight home, put on our jammies (not the guys – that would just be wrong), piled onto the sofa and all four of us watched American Idol. Go Megan, aka – Twirly Girl.
Jessie reported that she slept badly last night and woke up with a terrible headache. She has that look that leaves no question in my mind. The tough part is that she’s scheduled to take a biology test with the tutor this afternoon. Right now, I don’t see it happening unless the headache lets up a bit.
I added something new to the slowly growing recipe list this morning. It’s called Bucatini All’Amatriciana with Spicy Mozzarella and Meatballs. Translation = Spaghetti and Meatballs. Once again, I got it from Giada on Food Network.com and adapted it as a gluten-free menu. It was very good and not at all difficult. At first I though I couldn’t make it because the meatballs called for breadcrumbs, but I got some gluten-free bread, toasted it up and next thing I new, I had GF breadcrumbs. Try it if you’re in the mood for some good authentic Italian food.
*NOTE: The link here provides you with the regular recipe on Food Network. If you want my gluten-free version, click on my recipe tab.