Today, the cardiologist decided to increase Jessie’s Florinef from once to twice a day. This is what I was hoping for. He also seemed to really take an interest in cracking the puzzle of her illness. This is something I’m ALWAYS hoping for.
The doctor said that instead of just throwing more medicine at Jessie, why don’t we increase the Florinef while at the same time cut out the other medication she has been taking. Hmm…I kind of like this idea. I already felt strongly that her medication needed major tweaking and, let’s face it, she’s already unable to attend school. We all agreed to do this experiment. So here we go, trying something entirely new.
They did another EKG and everything looked good. Jessie got a little freaked when she asked the assistant if she would have to wear the heart monitor overnight again. The assistants reply was, no, but there was a possibility that the doctor may want her to wear a 30-day heart monitor. OH MY GOSH. It was one of those “speak and jump WAY back” moments that this poor little assistant didn’t know anything about. I thought Jessie was going to take her out right then and there. Luckily, she wasn’t required to wear the 30-day thingy, the assistant survived the strange encounter and all was well.
At any rate, whether good or bad, we should have an interesting week ahead looking for symptoms, side effects, spontaneous growing of additional limbs, mustaches, etc. We’ll keep you posted.
I haven’t written much on Jessie’s condition since Monday morning because there’s really not much to write. She hasn’t done as well for the past couple of days as she did over the weekend. Yesterday she was extremely pale again with a few of the spotty stabbing headaches.
The headache could be from lying in her bed reading, get this, “The Professor and the Madman: A Tale of Murder, Insanity, and the Making of the Oxford English Dictionary”. Sounds like a page-turner, doesn’t it? Some of the things that they make you read in high school really could cause excruciating stabbing migraines. Don’t you think?
I’ve said this a thousand times already, but we head back to the cardiologist today. I don’t know why I get so excited when we go to the doctor. I guess that, as a mother, I continue to believe that each visit will bring SOMETHING that will bring us a cure. Not a very realistic thing to hold on to. But, alas, I am a mother. That is what we do best, realistic or not.
As an aside, I just received my morning text message. It’s from a 15 year old girl (friend of Jessie’s) in Virginia who has developed quite the following. She sends a bible verse every day and has done it faithfully for about two years. Anyway, as I write this post, I receive mine. Here it is:
“Faith is being sure of what we hope for and certain of what we do not see.” Hebrews 11:1
Timely, don’t you think?
Have a wonderful day.
Today we went to the cardiologist and had an EKG and echocardiogram. Everything was fine, thank goodness. Jessie is wearing the heart monitor thingy for 24 hours and it’s driving her crazy! Therefore, she’s driving me crazy. Anyway, the doctor went ahead and prescribed Florinef. This will hopefully do a lot for the orthostatic intolerance. Jessie went ahead and began taking it today.
So that’s it until tomorrow. Today was a long day and last night seemed even longer. This girl’s getting some sleep tonight.