Tales of a Celiac Cheater…

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Okay, so we’ve glutted ourselves on gluten, massive amounts of gluten, for the past three months.  I am quite sure that the family has collectively gained a minimum of twelve pounds.

Jessie’s endoscopy was this past Thursday.  It went well.  She didn’t feel half as crappy as she did the first time.  In fact, the little twit  did so well that I wasn’t able to gain one ounce of loopy behavior, confession, or seriously embarrassing photos to hold over her head.  THAT’S how well she did.

We all, including the doc, believe that she has celiac, even without visible symptoms.  Stomach Doc said he’d probably call us with the biopsy results tomorrow.  When we whined that we expected the results to take at least another week, he winked and said he’d give us until Tuesday.  🙂

Back to the topic…gluten.  This is just a sampling of what Jessie has done to her tummy recently:  Panera Bread (one baker’s dozen of the cinnamon crunch bagels), pizza, pasta, fried chicken, did I say pizza?… um…oh yes.  LATE last night she made cupcakes.  She’s made cookies and waffles.  If I had more time and more space, I’d list more.  It’s true.  She’s been a partying fool.

Can’t say I blame her.  Would you?

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It’s Practically Over…

friends

Summer is passing quickly for us.  We have traveled, spent time with friends, played and rested.  To go one step further, we’ve had a roof over our heads and food on the table, so complaining would be a sin.  Forgive me because I’m about to sin.

School actually begins on August 3rd!!!  Clearly the people down here in Georgia are craving year round school.  The concept is nice during the year, but to go back while it’s still summer – well, that’s just a crime in my book.

We have now corralled Jessie and brought her back home for the two weeks of summer remaining.  She’s had fun, running mostly on adrenaline, I think.  Now she’s tired and grouchy. Yes, that’s what mom is given on a silver platter after traipsing all over the east coast this summer.  Ah, the rewards of parenthood.

Jessie is eating as much gluten as she can possibly get her grubby little hands on.  Her endoscopy is scheduled for next Thursday morning.  I really think it will be positive for Celiac Disease.  I’m wondering if, by that time, Jes will have consumed so much bread that she really won’t want any more.  It’s looking as if that may be her goal.

Goodbye until next time.  Enjoy yourself!  Life’s too brief NOT to.

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Celiac Update

Sweet Summertime

Sweet Summertime

I hope you are all having a wonderful summer.  It does seem to be flying by for us!  I wrote a check today and wrote June instead of July.  At least I got the year right! 😉

Brief update:

Jes has had a great summer.  She’s been able to relax and enjoy life for the past month.  In fact, the entire family has had a great summer so far.

We went to the gastroenterologist and had a little pow-wow about the new labs which were positive for Celiac.  As many of you know, we were shocked.  I later read that many celiacs show no signs of the illness, which makes no sense to me.  But that’s a topic for another day.

The doctor advised that, since Jessie is showing no symptoms, she should continue eating gluten (she’s thrilled) through the end of July, thereby giving her three full months.  We will then have another endoscopy to get a biopsy of her intestine to see if it is damaged.

I can’t remember the actual numbers and how they work, but while her antibody numbers in the labs were positive for celiac, they were not very high.  I think on one, the normal range was 0-3 and Jessie’s was a nine.  The doctor had a patient earlier that day who’s number was 175.  So, with that, the whole diagnosis remains in question.  Does she have celiac, but a mild case?  Can she eat gluten with little damage to her intestine?  The endoscopy will answer that question and give us a final answer.

So, that’s it.  It seems that the longer we deal with chronic illnesses, the more we learn that nothing is rational or normal, even the abnormal!

With that said, I bid you all a fond farewell until our next update.  Have an absolutely splendid July!

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She’s a Celiac!


Official town crier, "I don't heart gluten!  But I LOVE tuna!"

Official town crier, "I don't heart gluten! But I LOVE tuna!"

Where do I begin?

Well, you know (and if you don’t, read up) that the gastroenterologist advised Jessie to try out the whole gluten thing a couple of months ago.  The girl has seriously had a party for herself for the past eight weeks or so, consuming every gluten-laden food in sight, with absolutely no side effects.  As directed by Mr. Doctor, we went to have the labs done earlier this week to see what’s going on.

My opinion?  I told  Jes that it was a formality.  She clearly doesn’t have celiac.  She said she has no side effects but had a nagging feeling.  (Okay at this point you know the ending, but I’ll go on)  Doctor’s office called us this morning to say that her levels were up and it clearly indicated that she does have celiac.  I nearly fell over.

I marched upstairs to deliver the good and bad news to Jessie.  Good news?  Starbucks now has gluten-free cake proudly displayed for all celiacs to enjoy.  Bad news?  She’ll be eating it.

The nurse also said that, while Jessie’s levels were clearly indicative of celiac disease, she wasn’t the worst case scenario. The T3 test showed that her level was 9 while normal is 0-3.  Nurse advised that she had someone in the office yesterday whose level was 175. So, that helped to put things into perspective.  Apparently there are LEVELS to this disease.

We’ll be going in to see the doctor on July 1st and will discuss whether it’s safe to cheat from time to time when you have no symptoms or if she has to refrain from the gluten 100% from here on out.

So there you have it.  I’ve all but abandoned my “Gluten-Free Foods That Don’t Suck” section.  Guess I’ll be chugging along again!

I hope you are all having a wonderful summer.  We certainly are!  The school pressures are gone, THANK GOD!  I’m going to brag a bit, but hey, I am a mother.  Jessie pulled straight A’s.  It’s a good thing.  Now I have to deal with the school this summer and beg for the right classes next year.  In the words of Ms. O’Hara, “I’ll think about that tomorrow.”

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The Slacker

Who me???

Who me???

Who me?  My daughter?  My son?  Hubby? (Not hubby)  I guess it is to be somewhat allowed during the summer so I’ll take responsibility.  Here’s a brief update.

After the trip last week, Jes was quite exhausted for about 2-3 days.  (Heck, we all were)  When she couldn’t take my yapping and complaining about her unbelievably disgusting bedroom, she perked up and did a two day major clean resulting in two full garbage bags full of junk.  How do teenagers do that?  Anyway, she’s better now and has even spent time at the neighborhood pool “networking” for baby-sitting jobs.

We went to the neurologist last week.  I SO  immensely enjoyed telling the doctor that, against his suggestion to take Jessie to a hospital to see a psychiatrist (because he couldn’t find the cause of the migraines) and through stubbornness and research we found that the migraines actually came from Neurally Mediated Hypotension – not depression.  HA!  I love it when things like that happen.  The physician’s assistant was thrilled that we found the culprit.  The doctor didn’t have much to say.  Maybe because he was WRONG.  Uh-oh.  Is my attitude showing?  Need to check that.  Seriously, I’m not debating that depression can result from having a chonic illness.  Everyone knows that it does.  However, if I’ve learned one thing in the past several years, it’s to trust your instinct and be an advocate!  That gut feeling is always worth investigating.

So, summer has begun.  Things are still a little busy, but a good busy.  We’re taking road trips to visit friends – always fun.

Have a great week.

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DONE DONE DONE…

Every year I think I can’t take another year-end.  Every year, we make it through another year-end.  It’s over, done, good riddance.  Jessie finished up on Friday and we headed to Virginia for a long weekend.  Each member of the family, it seems, was just tossed out of the car at different points of interest as we traveled north.  By Tuesday evening we were all back home.  By tonight, we’re all exhausted, but it was worth it.   Here are a few photos of our weekend:

 

Absolutely beautiful Virginia mountains...from the dashboard.

Absolutely beautiful Virginia mountains...from the dashboard.

 

SIDE entrance to the Greenbrier Resort...Yeah, it's a mind-blower.

SIDE entrance to the Greenbrier Resort...Yeah, it's a mind-blower.

 

Jes and her best friend (Jes is the one note girl)

Jes and her best friend (Jes is the one note girl)

Wes taking over the highway, thank goodness.

Wes taking over the highway, thank goodness.

 

Jessie and Sophie, somewhere between Virginia and Georgia

Jessie and Sophie, somewhere between Virginia and Georgia

 

Rascal, affectionately known as the fun police

Rascal, affectionately known as the fun police

Happy summer, everyone.

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One More Day!

Just one more day, one more exam and summer vacation will officially begin at 12:15 tomorrow.  WooHoo!  Even more good news, Jes was able to finish everything – thanks to a few sleepless nights – and is doing fine. 

We ARE heading out for Virginia and West Virginia tomorrow.  Jeff and I will get to enjoy the Greenbrier Resort this weekend while Wes will visit friends in North Carolina and Jes will be in her beloved Virginia with friends.  Because of a Friday exam, Jes and I will be driving separately which means we get to hang around our old “hometown” until Tuesday instead of rushing back with Jeff on Sunday.  

After our weekend, we’ll head back home to tackle all of the doctors appointments that I rescheduled for the week after school. We go to the neurologist on Wednesday, then the cardiologist and finally the gastroenterologist.  Jessie will be getting the blood tests testing for celiac next week so we’ll get the results from that when we go to the GI doctor.  Jessie still thinks that he will say she has celiac disease even though she hasn’t had any reaction at all.  I think she’s just bracing for bad news, but I honestly don’t see how that can happen.  We’ll see.

Hope everyone’s “end-of-school” weeks are over and you’re enjoying your summer vacation.

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