Monthly Archives: April 2009

Looking Up and Ahead

 

Roanoke Girls, Jes in the middle

Roanoke Girls, Jes in the middle

The week ended on a good note.  Jes went to school yesterday for two classes and felt good afterward.  She says that she can tell that her body is pulling out of this relapse because when she gets tired, it’s more of a normal tired and she feels better after resting up a bit.  I sure hope that she’s right.  It sure was a long seven month relapse.

We’re heading into spring break now.  I’m not sure what next week will hold for us.  Jeff has to travel back to our “hometown” of Roanoke, Virginia for a few days and Jessie has been hitting us with a raging campaign to go along to see her friends.  We said earlier (in December) that she wouldn’t get another trip until summer because she went during Christmas break and felt horrible after using little common sense and throwing all caution to the wind.  Honestly, she’s 16.  How much common sense is she supposed to have when she gets to see her peeps for the first time in four months?  Obviously, I’m sitting on the fence with this one.  I’m the weak one who hates saying no.  Jeff on the other hand is the tower of strength with this one and is staying firm in his decision.  The next several days will be interesting as Jessie continues to run a pretty strong campaign!  So far she’s written two full page letters to her dad making every conceivable promise under the sun.  I just sit back with this one out of my hands and watch to see if he caves.

I understand his point fully and will support his decision.  As for Jessie, I sympathize with her.  She’s been miserable sick for all these months and wants to go back “home”.  She’s on spring break, they will be in school during the day and she can sleep in and rest.  See, I am truly the weak one in the family.  There’s always one.  The kids know who to appeal to.

Oh well, we’ll see how it progresses.

Sophie at the Studio

Sophie at the Studio

I’ve put a picture of our dog, Sophie, standing outside of my studio at our home in Virginia.  The studio was in the top part of a detached garage on the side of a hill. Our house was like a cabin in the mountains.  Actually, it WAS a cabin in the mountains.  I loved it dearly.  Not fancy, but unique.

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It’s Blue Jean Friday

That’s what we like to say around the house.  My husband gets excited about Blue Jean Friday.  Although, if I look a little deeper it’s probably excitement about the impending weekend rather than the fact that he gets to wear his jeans.  In addition, the sun is supposed to show up for Blue Jean Friday. YEAH!

Yesterday was a good day.  Jessie went to school around mid-day, then stayed afterward to play catch-up.  In all, she was there from about 1:30 until 4:45 – a good day indeed.  The best thing is that she didn’t feel the exhaustion afterward.  In fact, she was in her room doing pilates when I went to bed last night.

We’ll see how she fares upon waking, but the plan is to head back into school this morning for a few hours. Next week is spring break and I’m thinking that, if we’re lucky, the following week will get us back to semi-normal/normal.  Maybe the medicine is completely into her system and working properly.  Whew.  It’s been a LONG seven months.  Gosh, I didn’t realize that this bout has actually lasted SEVEN months. I’m talking seven months for just this phase.  She’s actually been sick since 2005.

This whole sickness continues to boggle the mind.  What have we learned from this experience?  Does she have a myriad of illnesses including CFIDS, Celiac, and Orthostatic Intolerance?  Is she pulling out of CFIDS and moving into something else?  Did she ever really have CFIDS?  My answer is, of course she did.  The onset was too textbook.  Even the specialist, who sticks to the diagnosis of clinical CFIDS wonders if the majority of her problems are from Celiac. The symptoms are extremely similar.  The new pediatrician questions whether or NOT she has Celiac.  We will go to an gastroenterologist this month and finally put that question to rest.  The cardiologist believes that CFIDS is an overall name for an underlying illness.  I tend to side a little with him.  I think it’s something that will one day be figured out by a researcher and make complete sense.  While I’m fantasizing, I’ll add that it will have a cure.  Hey it’s my brain and my thought process, I can add anything I want to.  

Once again, my constant questions rear their ugly head.  But isn’t it the questioning that moves us forward?  I like to think so.

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Money and Thunderstorms

We need a little of this in our part of the woods.

I’m still chipper!  I’ll say that first before it looks like I’m whining.

Today is rainy and thundering.  We SO need the rain, but I am quite sick of it.  Gray does absolutely nothing for me.  Also, I had to have, what I now believe is, my jinxed car repaired yesterday to the tune of over $1000!  GRRR.  I tried to look on the bright side and think it’s still cheaper replacing the stupid thing.  

Yesterday, Jes had grand plans of going in to school around mid-day, taking a test, going to class, taking another test after that class, etc.  She went as far as to get a shower, then couldn’t muster the energy, so she stayed home and continued to play catch-up with school work.

Today, we’re hoping for better things.  I think it’s a good sign that, at least, there are positive plans each day.  Things don’t always pan out, but it’s still looking up.  It’ll be an interesting balancing act today trying to pick up my (cursed) auto, go to the dentist, get Jes to school at some point, then pick her up, while trying to run a few errands.

Anyone have a little spare sunshine and color to send this way?

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