That’s what we like to say around the house. My husband gets excited about Blue Jean Friday. Although, if I look a little deeper it’s probably excitement about the impending weekend rather than the fact that he gets to wear his jeans. In addition, the sun is supposed to show up for Blue Jean Friday. YEAH!
Yesterday was a good day. Jessie went to school around mid-day, then stayed afterward to play catch-up. In all, she was there from about 1:30 until 4:45 – a good day indeed. The best thing is that she didn’t feel the exhaustion afterward. In fact, she was in her room doing pilates when I went to bed last night.
We’ll see how she fares upon waking, but the plan is to head back into school this morning for a few hours. Next week is spring break and I’m thinking that, if we’re lucky, the following week will get us back to semi-normal/normal. Maybe the medicine is completely into her system and working properly. Whew. It’s been a LONG seven months. Gosh, I didn’t realize that this bout has actually lasted SEVEN months. I’m talking seven months for just this phase. She’s actually been sick since 2005.
This whole sickness continues to boggle the mind. What have we learned from this experience? Does she have a myriad of illnesses including CFIDS, Celiac, and Orthostatic Intolerance? Is she pulling out of CFIDS and moving into something else? Did she ever really have CFIDS? My answer is, of course she did. The onset was too textbook. Even the specialist, who sticks to the diagnosis of clinical CFIDS wonders if the majority of her problems are from Celiac. The symptoms are extremely similar. The new pediatrician questions whether or NOT she has Celiac. We will go to an gastroenterologist this month and finally put that question to rest. The cardiologist believes that CFIDS is an overall name for an underlying illness. I tend to side a little with him. I think it’s something that will one day be figured out by a researcher and make complete sense. While I’m fantasizing, I’ll add that it will have a cure. Hey it’s my brain and my thought process, I can add anything I want to.
Once again, my constant questions rear their ugly head. But isn’t it the questioning that moves us forward? I like to think so.