A Serious Pile of Supplements and Medication

AM & PMMy pile is bigger than yours.  

Sadly, but I suppose not surprisingly, all of Jessie’s initial symptoms from 3+ years ago returned when she went off the medication. We had a telephone appointment with our Chronic Fatigue/Celiac specialist this morning and she told Jessie to begin again with the meds.  She even added another supplement to the list.  Also, if she doesn’t begin to feel a little better soon, we’ll add a low dose thyroid medicine to the pile.  I’ll have to try to take a picture.  This is what she’s taking:

Pamelor, Lyrica, Florinef

Multi-Vitamin, Fish Oil, Calcium, CoQ10, Magnesium, B Complex, B2, B12 and now D3.  Her pill box runneth over.

Jessie has to drink at least one large gatorade a day, increase her salt and protein (she’s eating those little salt-laden packets of peanuts each day.)  The doctor suggested making our own beef jerky to give her the needed protein and sodium and to keep her blood sugar up.  I picked up a package of Turkey Jerky today, which is loaded with sodium (700mg) and protein (15g) and only has 80 calories.  The girl would not TOUCH it.  That is a topic for another day.

I’m pleased to say that we need to add a pediatric gastroenterologist to our little party of physicians as well as a new primary care physician.  I like to think we’re doing our part for the economy by helping out the poor, starving, severely underpaid medical specialists.  

That’s all for now.  Have a wonderful evening.



Filed under Daily Chronicle

4 responses to “A Serious Pile of Supplements and Medication

  1. I’m thinking about you. Protein is an issue sometimes. I am a vegetarian and I get my through egg whites, nuts and beans. Sometimes it’s hard. Hang in there. 🙂

  2. Sue

    Don’t feel bad about the pills – that’s really not all that much, believe it or not! Each week, I fill 9 weekly pill reminder containers for the 3 of us (1 for Craig and 4 each for Jamie and I).

    Jamie’s going to Myrtle Beach with his school band next week, and they said the policy is for the band director to hold all medications – in their original containers – and give each student his or her meds. I’ve been trying to explain how impossible that will be. Jamie takes 20 medications at 4 different times of day. I’m hoping the school nurse will relent and let us keep the pills in their reminder containers. Just what I needed – another problem to deal with!

    I hope going back on her meds will help Jessie to feel better.


  3. Sue

    P.S. I was interested in reading your School Schmool post, but your blog keeps telling me the page doesn’t exist. I can see it on my list of blogs I follow, but when I try to click through, it’s not there. Maybe you could try reposting it?


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