Maybe a Little Better

Jessie’s goal yesterday was to make it to 1:15 so that she could take the freaking heart monitor off.  She actually wore a belt to bed the previous night so that the little box attachment would remain on her body.  Needless to say, it drove her crazy. 

Jessie did take a dose of the Florinef on Wednesday and then again yesterday morning.  I don’t know if it’s my wishful thinking, if it’s too early or what, but she reported that her energy level was a little better.  It seemed to me that she didn’t sit or lie down for any extended periods yesterday, which is unusual.  Maybe the medicine is working a little already. Or maybe it was just a good day.  Oh well, anxious parent here.  I guess time will tell.  They did give her the smallest dose.  

Jessie told me that a friend will be coming by today at some point to drop off a couple of DVDs.  I asked her if she wanted the friend to stay and watch the movie with her and she just scrunched her face and said she really didn’t feel like it.  This is a pretty good friend, so I know she’s still not feeling too much better.  Jessie actively participates in texting and Facebooking (is that a word?), but when she’s not feeling well, she just doesn’t want visitors.  I guess I’d be the same way.



Filed under Daily Chronicle

5 responses to “Maybe a Little Better

  1. I hope the Florinef does help.

    As far as the friends, we can relate. And my Jessica joined Facebook for that reason, and it’s actually been great.

    I hope she’s feeling better soon.

  2. Sue

    Hurray for Florinef! If Jessie’s experience is like my boys’, she should get a lot of improvement from Florinef, especially given her severe response to the tilt table test. Just don’t be disappointed if it doesn’t work immediately. We didn’t see any improvement in Jamie until he got up to 0.2 mg (2 tablets). Just remember to keep up the salt and fluids – the Florinef won’t work without lots of them.

    I hope you (and she) have a great weekend!


  3. Sounds like the med might be working. That’s great! Sometimes you just don’t feel like entertaining and that’s ok. Once she feels better, she will. Have a nice weekend.

  4. judi

    Hang in there girls. Love ya

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