Daily Archives: February 16, 2009

Monday Morning

Monday, the start of a new week.  This week our part of Georgia is celebrating spring break.  Jessie isn’t going to school right now anyway, but I’m thinking that the tutor is on vacation and therefore, so are we!  

Jessie’s headaches were pretty relentless last week and, as always, I’m hopeful that today will find some relief.  We shall see.  Everyone sleeps in except mom and dad this week.  So this is my quiet time.  

Last week we were told to add TONS of supplements to the daily medicine intake, so Jes is now taking, twice a day, Lyrica, Pamelor, multivitamin, coQ10, fish oil, calcium, magnesium, b12, and b2 (which I haven’t found yet).  She adds in Fioricet as needed for headaches.  Jessie actually took a picture of her pile of medicine for Facebook, I think.  

She was also given orders to consume more salt and water and to lie down for 10 minutes every hour.  This is a result of the orthostatic intolerance.  Now as an aside, tell me if you disagree, please.  Okay, first here’s the list of suggested higher sodium foods:  noodles, potatoes, parmesan cheese, dill pickles, tv dinners, sweet & sour pork, lasagna, soup, fish & chips, hamburger, hot dog, fried chicken, pizza, pretzels, soy sauce, olives, and salted nuts.  Gimme a break.  I told Jessie that if a doctor told me to eat more foods like that and lie down for at least 10 minutes every hour, I’d say, “sign me up!”  Realistically, we know that if she ate that way every day (in a gluten-free way) she would gain 50 pounds quickly – not wise.  So we will continue our search today for salt tablets.  Whole foods and Walmart, here we come.  One more thing.  When my husband and son learned that she needed salt, they volunteered to head out to the nearest farm store and pick up a salt block so that Jessie could go out in the back yard and lick it from time to time.

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